The Latest On Tory

Here is the latest on Tory. I just got off the phone with the neurologist and this is what he had to say: We are canceling the MRI, we dont feel it is necessary to go through with it. I am also taking her off the benadryl, all it does is make her hyper and not take naps, which leads to grouchy and tired Tory which leads to more passing out. We were debating on putting her on atrapin (sp) for awhile, it was suppose to increase the blood flow to help Tory with the passing out, but the neuroligst did research on it last night and it has to be exact and could be lethal if given incorrectly and has not been proven to be effective. So we are not going to be putting her on that medicine.
What lies ahead: I am going to take Tory to her pediatrcian and get her iron levels checked to see if they are back to normal. We will be seeing a cardiologist within a week and a half (hopefully) and they are going to take it from here. She will probably wear a holter heart monitor to record what her heart does during theese breath holding spells. It sounds like things are leading back to her heart and hopefully the cardiology department will have some more answers for us.
We are concerned that she is not been really responisive to the normal treatments for breath holding and the frequency that she has these episodes. Hopefully the cardiology department will give us some more answers!

She's got it figured out

Kelsi came home from school today. She told me that she had made a new friend today at school. So I start asking a few basic questions, name: Jojo, what did you do today: play together at play time, are you going to play tomorrow: yes, we are going to play all the time now, Is Jojo a girl or boy: boy and he says he is going to do whatever I want. He's cute.

Crap we have to all ready lock her up!

Kelsi's new room

This has been my project this week. We moved Kelsi downstairs so she can have her own room. She really likes it. She plays in her room all the time now. We found the headboard for $50.00 and stripped the old paint and repainted. It is an antique bed, it is very nice. We painted the room pink because Kelsi insisted on having a pink room. I also found the brand new bed set on ebay for .99, it was a steal! Its a very cute girly room!

Update on Tory

Thank you all so much for your fasting, prayers and thoughts for Tory. I have definitly felt them and feel more comforted knowing we have so many people around to help.
Tory has been having seizures lately. Her two episodes this week both happened after her breath holding spells. We have seen a Nerologist at Primary Childrens and we are working with them to determine a cause. We did a bunch of tests on Friday and I got the results from those this morning. She had an EKG, and EEG and some iron studies. The iron studies came back low, which we knew they would and the EEG came back normal. So the neuroligst think that these seizures are happening due to a lack of oxygen to her brain during her breath holding spells. So we are now working on trying to find a way to stop her breath holding. We are doing iron supplements which are suppose to get her iron levels back to normal and are somehow linked with blood being pumped to her brain faster. We are seeing a cardiologist at Primary Childrens to see if there is anything wrong with her heart to help blood / oxygen get to her brain faster. We are also putting her on a steady dose of Infant Benadryl, which is somehow linked to improving the breath holding (?)
I am also scheduling an MRI to make sure there is not an abnomality in her brain and she is not one of those under 5% that have a seizure disorder that did not show up on the other tests. Depenedent on what the neurologist thinks on thursday after Tory has been on the bendaryl will determine if she will go through with the MRI, but we will have the appointment at least set up if she determines it necessary.
So I am petrified right now of Tory holding her breath and getting to upset. She passed out 3 times yesterday. It is very comforting to know that her tests came back normal and that there is a good chance she dosent have a seizure disorder and she is in no immediate danger. We will keep plugging along and try to find answers and what ever we do dont upset Tory!

Tory

I dont want to go into a lot of details right now but Tory is having some medical problems right now and we could use the extra thoughts and prayers in her behalf.

Thanks

Utah creams Alabama

We watched Utah cream Alabama in the Sugar Bowl last night! It was such a good game, I was preparing myself to console a very upset Jeff as Utah got wasted but boy was I very pleasantly surprised when Utah killed Alabama. If you have ever watched a football game with Jeff you will understand his emotional attachment to the game. Here a few shots of him as he was watching the game.

1st quarter

2nd quarter

3rd quarter

4th quarter

Happy New Year

I hope you all had a fun and happy new year..... we are boring people who have not made it to midnight on new years eve for several years, it'll still be the new year when we wake up :)
But just to get it started off right I had a funny kid post, this one is Kelsi

Me at 11:30 p.m. 12/31/08: Kelsi go to sleep and sleep in tomorrow morning
Kelsi: Why (very grumpy)
Me: So you wont be a grouch tomorrow
Kelsi: I am always a grouch!

Guess you cant fight that logic