Ok here is another update on Tory.... we went to the cardiologist on Monday and in my opinion the guy had all ready written us off before he came in the room. They did another EKG on her and it was normal. This is what I got out of the conversation. We dont really deal with "breath holders" "Even if her heart rate got to low when she held her breath we wont do anything about it." "We will exam the results of her heart monitor when you get it back, by they way how long are you suppose to wear it"... ummm didn't he send in the order, should'nt he know these things. "We will let you know if there is anything concerning when we review the data, otherwise you wont hear from us again." UGGGGHHHH Good news out of all of that there is nothing wrong with her heart.
So my frustation is that yes I know that breath holding is a normal things for kids to do and that they will eventualy grow out of it, (but she is definitly on the way high end of the scale) which seems to be our answer right now. Which of course is the best answer possible... but in the mean time I have to watch Tory hold her breath 2 - 3 times a day and have seizures constantly. Today alone she has had 2 seizures and each one still makes my heart race and leaves me overwhelming upset and frustrated. I dont know where to look for answers anymore and I hate watching my little baby do this to herself. She wont remember any of this I am sure and will grow up normal and healthy but I think I am going to have nightmares forever about this.
What we are going to try to do is keep her as well rested as possible since they tend to happen more when she is tired and hope she grows out of it quickly. ( every finger possible crossed )
Thanks for reading my pity me party......
Dad's 39th Birthday
9 years ago
4 comments:
I"m sorry to hear the doctor was not what you expected. :( If you need anything holler to me and I'll be there to help. We'll pray that this passes soon for you and your family. Hang in there!
That is horrible Sarah. I am so dissapointed in doctors sometime, but it is nice once in a while to get one who you really feels like cares. (not the norm I think) That is so frustrating. Well let me know if you guys decided something else or if you need anything. We love you guys, and Lexi is always praying to Heavenly Father to please help Tory to not be sick. :)
What a butt! I am sorry for you, it's probably pretty scary for Gabe and Kelsi to see it happen too. Not fun! We'll keep you in our prayers and your names in the Temple. I'm sorry there isn't much more we can do for you, but if there is anything, let me know. (by the way, Spike wasn't on sale out there anymore, sorry, I keep forgetting to tel you)
If Ryan were writing this he would go off on his soap box about Doctors. But I just want to say I am sorry that her case was belittled when it is such a downright scary thing going on with her.
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